Racial and ethnic minorities in the United States, including immigrants and refugees, have higher rates of diabetes, and worse outcomes than the general population. Stories told by people who live successfully with diabetes may improve the health of people who are having difficulty living with diabetes.
Stories for Change is a digital storytelling intervention aimed at improving diabetes management among Hispanic and Somali immigrants and refugees with type-2 diabetes in Rochester, Minnesota. This multi-phase project began in 2011 and is currently in its 4th phase.
Phase 1 included development and deployment of a culturally and linguistically appropriate interview-based survey, in order to understand diabetes-related attitudes, knowledge and health-seeking behaviors among Hispanic and Somali adults with diabetes. Results from the survey were used to develop a focus group facilitation guide which was used in Phase 2. Focus group attendees included a subset of survey participants who were invited in order to learn more about their lived experiences with diabetes management. Transcripts from the focus groups were analyzed and emergent themes were used to inform the next phase. During Phase 3 a “storytelling guide” was developed, and 8 participants were invited to share stories that centered on themes related to successful culturally relevant strategies for medication management, glucose self-monitoring, physical activity, and nutrition for diabetes. The study team worked with the Center for Digital Storytelling to develop and record 8 digital stories during a multi-day workshop held in Rochester, Minnesota. The current phase of the project aims to evaluate the the digital stories developed in Phase 3 for content and linguistic acceptability, as well as test screening and enrollment processes at four sites across Minnesota.
A future phase will evaluate the effectiveness of these digitally recorded stories in improving health outcomes among adults with diabetes, through implementation of a multi-site randomized clinical trial.
Mayo Clinic: Sponsorship Board, Divisions of Infectious Diseases and Primary Care Internal Medicine, Office of Health Disparities Research, Center for Clinical and Translational Science, and the Community Health Assessment and Improvement Measures Program
Alliance for Chicanos, Hispanics and Latin Americans
Somali Community Resettlement Services
Center for Digital Storytelling